I've had my phone glued to me since the urgent referral was made. Of course the call regarding the appointment came through as soon as I went to the caravan. We went home on Thursday night, had the appointment yesterday and have headed back to the caravan. My daughter is 'on call' in case of emergency, as symptoms suggest, and a medical professional has confirmed, that there is the potential for it to become one.
It's all 'hurry up and wait' when you're an NHS patient. The appointment just came within the 2 week wait window. The urgent CT scan that is needed because the more usual investigation isn't suitable due to symptoms, frailty and co-morbidities, could take a further 2 weeks to be done ( my phone will be glued to me until that is sorted, so I don't feel able to switch off mentally), and we have been warned that it will, more than likely, take a further 3 weeks to be reported on due to a backlog. Only then will we get another phone call to be given an appointment to go back to the clinic for the results.
To be honest, it really doesn't look good, and I'm resigning myself to that.
As I said in a previous post, it's going to take a miracle... things seem to be worsening quickly and more has been admitted to me and to health professionals.
Of course, my husband and younger daughter will help out, and my elder daughter is being supportive from afar, but in reality, it's mainly down to me, and that's a scary prospect, both physically and emotionally.
Waiting is awful, I hope it doesn't develop into an emergency, but if it does then it will hopefully expedite the other tests. Thank goodness you've got the caravan, and family to help out. xx
ReplyDeleteThanks Sooze. If the emergency happens it will be the same thing that killed her dad 😪. It will be emergency surgery or death or potentially both. It is a relief to know we'll potentially still be able to get away before the end of the season, but it all rests on the results and if she continues to worsen quickly. We might just have to close down sooner.
DeleteSo much waiting and it sounds like more stress and pain regardless of the test results. Small respite moments when you can.
ReplyDeleteWaiting for tests and results is stressful as everything moves slowly. I'm hoping her CT scan is done quicker than anticipated. I had one recently and was told it would be a 6 to 8 week wait here, or I could go to Manchester for it. I opted for here as I'd already waited 7 months for the appointment, but it was done in less than 2 at the mobile scanner.
DeleteWe're grabbing every moment possible. We had an impromptu sea swim today, me in underwear and a t-shirt! I figured there are worse things than momentarily seeing a 60 year old in black full briefs and a black t-shirt striding into the sea , so I took off my shorts and got in there!
Make the most of those moments - best wishes.
ReplyDeleteThanks Joan. I'm not sure how much more we'll get there before we have time shut down for Winter so we made the most of the sunshine.
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